|
> Registries
Observatoire HTAP, based at the Pneumology Department of Hospital Antoine Béclère in Paris, wants to collect patient data from sufferers of Pulmonary Hypertension (PH) and elaborate about PH being a rare disease to increase the knowledge of this disease and hence improve its treatment - all over France. Enabling doctors to share knowledge and ensuring that patients receive the best possible treatment. The main challenge is to find a system that would be quick and easy to use.
Thanks to a customized solution created to collect data using uniquely patterned Case Report Forms, Physicians can access and query the database of collected data dynamically using a complete web based application. The Digital Pen and Paper solution enables the Observatoire HTAP to get hold of the most complete, accurate and constantly up-to-date information possible about PH and people who suffer from it for a better understanding of the disease to enhance treatment, resulting in improved care.
• Company Name:
Observatoire HTAP - Hospital Antoine Béclère in Paris
• Project:
National program for the collection of data about people suffering from Pulmonary Hypertension
• Results:
Doctors, in a network of 24 regional hospitals, are using the Digital Pen & Paper technology to gather and submit information to a national database
60 pens are used at the 24 participating centers
All new patients undergo a thorough interview. During follow up visits, a simpler form is completed, and depending on how the patient is faring, the doctor decides whether to continue ongoing treatment or to pursue another option.
• Benefits:
User-friendly Digital Pen and Paper technology makes it quick and easy for doctors to collect and submit patient data.
The information is continuously being updated with input from recently enrolled patients or from those already in the program.
Doctors can access information about their own patients and extract reports, charts and statistics to support their work.
Staff at the centre in Paris can access all patient data collected from around the country and use it to improve the understanding of the disease, and hence, patient care.
Unique pattern and secured data transfer ensure traceability and confidentiality of patient data collected.
Print on demand feature allows Béclère Center to print additional sections to continue monitoring enrolled patients.
|
